11
The series is a narration of a young boy’s life. Benedek is 11 years old, he started fifth grade in September, collects minerals and has a sister Bori, who has rett syndrome. The project deliberately navigates the shared time and space between Benedek and Bori, utilizing their relationship as a pivotal lens through which to explore the intricacies of Benedek’s experiences and emotions. Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.
collaboration with The Hungarian Rett Syndrome Foundation
Exhibited:
Bonds - MOME
Photo Month
Budapest, Hungary 2014
Persistency - Backlight Festival
Moholy-Nagy University of Art and Design
Tampere, Finland 2014